The aim of my research program is to promote health and healthcare equity among adolescents and young adults coping with chronic illnesses. Employing community-based participatory research, qualitative research, and human-centered design strategies, I actively involve the community and intervention recipients in the development, implementation, and evaluation of interventions aimed at enhancing self-management behaviors and addressing inequities to enhance health outcomes. I lead Dr. CJ's lab and my research interests encompass various areas including self-management of chronic conditions such as sickle cell disease, health disparities and equity, spirituality and health, qualitative research methodologies, community-based participatory research and human-centered design.
During my time as a hospital volunteer in high school, I had the privilege of caring for a child living with sickle cell disease (SCD). These interactions left a lasting impression on me, shaping my character and inspiring me to become a catalyst for change. Additionally, witnessing my brother's journey with sickle cell trait (SCT) and the premature end of his promising basketball career due to renal complications further fueled my determination to raise awareness about SCT and SCD within my family and community.
One particular moment stands out in my memory: while concluding a research interview with a young man living with SCD, he expressed surprise and reluctance that our conversation had ended so soon, saying, "Wow, are we done already?" In that instant, I fully realized the impact of giving voice to and collaborating with adolescents and young adults living with SCD. This experience reaffirmed my commitment to advocating for and collaborating with individuals affected by this condition.
Principles of self-care are essential to ensure one's well-being and ability to provide optimal care for patients. Cura personalis, which translates to "care for the whole person," is one of the most significant principles I have embraced at Marquette. It emphasizes the importance of investing in oneself, scheduling self-care activities, prioritizing them and not feeling guilty about doing so. Laughing often, forgiving quickly and celebrating everything are also essential aspects of self-care. These practices enable individuals to be the best version of themselves, benefiting both themselves and others.
